2nd seizure in two weeks.
Last Wednesday, after I celebrated with the r house, their adoption victory, Alex had a really major seizure that lasted 6 minutes.
We ended up at Primary's and was sent home.
This is/was so scary. It seemed a bit unnerving for our neighbor boy who rode up to th hospital with me and Alex. It is so hard to get used to the idea of your son/friend not know who you are for a while, let alone understand that they don't even know who they are.
We had to tell him repeatedly, that we were nice people, that he could trust us. We had to tell him his name over and over again.
But that is not even the hard part.
Our boy is/was/becomes non verbal. The look in his eyes said so much, yet his voice was cut off from us.
****
We have completed two test so far. The kidneys are clean of any tumors!
YES!
The heart is not so clean, but with the help of prayer and a father's priesthood blessing, Alex only has one small tumor in his heart.
YES!!
He had three at the last echocardiogram.
We have been blessed.
Now we face the MRI today. This is the one test I have been dreading.
I pray there are no new tumors.
I pray the ones he has have not grown.
But, I have faith in prayer. I have faith in the priesthood my husband holds. Whatever happens, I have been promised peace and comfort.
I do ask all of you to pray for Alex.
Pray that he will continue to handle his life with the same grace, patience & class,
he has demostrated thus far. Such a great example, to me, of how I should carry myself in the face of so much stress and uncertainty.
If you have ever spent a few minutes to really get to know Alex, you will learn that he is truely one of those young people that will bless your life. He is an amazing person.
Not because his is my son (that's a bonus for us),
but because of just who he is.
Not because his is my son (that's a bonus for us),
but because of just who he is.
Love ya Nakia. We will keep Alex in our thoughts and prayers. Let me kow if you need anything.
ReplyDeleteThat must be so scary nakia. Like your son, you too are a very brave and strong person. I will be thinking of you today and praying in your's and your son's behalf. Please keep us all updated when you can.
ReplyDeleteMy thoughts and prayers are with you and your family at this time. I am with you in thought. I wish I could be down there for you and lend a helping hand.
ReplyDeleteWe just went through a scare with Nicky in July. They thought he had Leukemia and we had to go to Spokane do all the tests. Before we left he was give 2 blessings. Then as we travled our community gathered in the local gym and had a community prayer for him and our family. The next day we went to the hospital. And let me say I felt compltly hepless. Here is my son lying there and all I can do is pray and hold him. There was an hour between tests and then we waited and waited. I think that is the hardest thing I have ever had to do is that waiting. The Doctor comes in and and leans up on the bed loves up Nicki and with Tears in her eyes says she has no explenation for it. But all his test results are on the rise at rate that was unbeleavable and he is healthy. No Cancer. All I could do is thank the Lord. He worked a mirical for our family that day. And proved to me that he is there and he is listening.
I know this and testify to this. He is with Alex and will be there to get you him and you and your family through this.
I love you and your family dearly.
With Love Always. Ursula
love you!!!!!
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